Why should those with HIV
disclose this fact with their sexual partners?
The tension between the need to maintain control over
personal information and the moral and ethical obligation to warn others of the
potential for HIV-related risk is at the core of the debates about the use of
criminal law to encourage disclosure or punish non-disclosure of one’s
HIV-positive status.
Many HIV-positive individuals
are willing to share information about their HIV status with their partners.
The circumstances and timing often vary. However while some people are willing
to tell their sexual partners immediately, others may hold back because of
concerns about potential negative consequences. Some HIV-positive people
may be reluctant to disclose while trust is still developing in relatively new
relationships.
An HIV-positive person may be
misperceived as HIV-negative by a sexual partner simply because the partner
wrongly interpreted the HIV-positive person’s silence on the matter. It is
also conceivable that an HIV-positive person may intentionally lead a sexual
partner to believe that he or she is HIV-negative. Sometimes this is
accompanied by an intention to ‘correct the record’ at a later date when trust
and emotional connection have developed. For many people, HIV disclosure
is not an event or a one-time conversation. It is a process that takes time and
constant communication.
In addition, some HIV-positive people try to disclose their
status to sexual partners in ways that do not include direct and open discussion
of HIV. Although this oblique or implicit disclosure may lead to
miscommunication, this may not be evident to either partner at the time of
HIV-related risk-taking.
In a 2003 book examining disclosure amongst a wide range of
HIV-positive people in the United States, the authors, Klitzman and Bayer
included the example of an HIV-positive man who told his HIV-negative female
partner that he expected to have a shorter lifespan, without explaining why. In
retrospect. the female partner said she understood he was referring to the fact
that he had HIV, but there could be lots of reasons why someone would make a
statement like that. Unfortunately, undecipherable coded communication is no
communication at all.
The application of the criminal law to potential or actual
HIV exposure or transmission calls attention to the potential difficulties that
people with HIV may face when considering disclosure of their HIV-positive
status. In particular, people living
with HIV may choose not to disclose for fear of rejection, stigma,
discrimination, or violence, loss of
privacy and confidentiality.
For women in particular,
especially in countries where human rights are non-existent, confidentiality of
medical information, including HIV status, is essential to the protection of
their human rights, because these women may find themselves abandoned, subject
to domestic violence, or ostracised if their domestic partners, families or
communities discover that they are HIV-positive.
Research from Africa indicates
that the fear of disclosure of HIV status is one of the main barriers to
women’s use of voluntary counselling and testing services and this fear reflects
the unequal and limited power as many
women have to control their risk for infection. Further, in some cases,
particularly for women the fear of violence may be a reason for not disclosing
their HIV status.
Some prosecutors in criminal
cases may portray a non-disclosure on the part of the HIV person as a conscious
effort to deceive which may instead be simply a form of behaviour that has
resulted from denial, lack of self-efficacy to disclose, or concerns over
potential repercussions of disclosure.
The law may not distinguish between acts engaged in through
love or simple lust, but the reasons for disclosing and not disclosing, or
waiting to disclose, HIV-positive status would seem to change almost completely
based on the forms of intimacy and the relational systems that structure them
with casual and long-term partners.
Participants at the UNAIDS technical consultations noted that
although all people have an ethical obligation not to cause harm, a blanket
rule of mandatory disclosure of HIV infection would fall most heavily upon
those whose circumstances make disclosure difficult or impossible which would
likely have an effect on women disproportionately. Consequently, there
was an agreement that where there are reasonable fears of violence or abuse
related to HIV disclosure or use of HIV prevention methods, the law must not
expose people to criminal liability under these conditions. Participants
emphasized that those responsible for developing policy and law must take
barriers to disclosure and to taking precautions into account and develop
strategies for overcoming them.
Since HIV is a highly stigmatized condition, WHO and UNAIDS
support a human rights approach by encouraging beneficial disclosure of HIV
status. Since HIV is a highly stigmatized condition, WHO and UNAIDS support a
human rights approach by encouraging “beneficial disclosure” of HIV status.
This approach emphasizes that individuals should have control over if, how and
when to tell others about their HIV-positive status. Beneficial disclosure,
they explain, “is disclosure that is voluntary; respects the autonomy and
dignity of the affected individuals; maintains confidentiality as appropriate;
leads to beneficial results for the individual, his/her sexual and
drug-injecting partners, and family; leads to greater openness in the community
about HIV/AIDS; and meets ethical imperatives so as to maximize the good for
both the uninfected and the infected that individuals should have control over
if, how and when to tell others about their HIV-positive status.
Beneficial disclosure, they explain, “is disclosure that is
voluntary; respects the autonomy and dignity of the affected individuals;
maintains confidentiality as appropriate; leads to beneficial results for the
individual, his/her sexual and drug-injecting partners, and family; leads to
greater openness in the community about HIV/AIDS; and meets ethical imperatives
so as to maximize good for both the uninfected and the infected.
Quite frankly, I have a problem with this reasoning. Although I am
sympathetic to those unfortunate people who suffer from AIDS, I am not
convinced that they should keep that information from their sexual partners.
Imagine if you will, a woman is going with a man she loves and both have
expressed the desire to have children. They then get married. He is HIV
positive and doesn’t tell his wife of that fact and he impregnates his wife. Not only is she pregnant, she has now become a
victim of AIDS and her unborn child.
Although HIV can pass from an
HIV-infected mother to her child during pregnancy, at the time of birth, or
when breast-feeding her infant, medical treatment of both the mother and her
infant can minimize the chances of that happening.
HIV-infected women ideally should
start “anti-retroviral therapy” (ART) before pregnancy, both for their own
health and to reduce the risk of HIV transmission during pregnancy. Women
already on ART should continue to receive it during pregnancy. The goal is to
lower the mother's HIV viral load (the concentration of HIV in her blood) as
much as possible to prevent infection of the fetus. The lower the mother's
viral load during pregnancy and birth, the lower the risk of infecting her
baby. A baby's chances of being born with HIV are less than 2 in 100 when the
mother has a viral load so low that it's undetectable.
However, if the mother didn’t get
treatment and that is highly likely if the woman doesn’t know how to get it
such as in underdeveloped countries, she will pass on her HIV to her child.
It is my honest opinion, that if a man or a woman is HIV positive, they
should inform their sexual partner. If they don’t do this, it is a form of
deceit in which forgiveness will be hard to obtain if the non-HIV partner then
becomes HIV positive.
Incidentally, if a man with HIV positive ejaculates in the mouth of his
sexual partner, she will not be infected as the acid in her stomach will
destroy the HIV virus. That being as it is, I don’t see why he should disclose
to her that he is HIV positive. However, if intends to have vaginal or anal
sex, she will become infected therefore disclosure is absolute.
In India, the most recent
draft of India's HIV/AIDS proposed law includes a legal duty for people living
with HIV to notify a sexual partner of one’s HIV status, engage in safer sex
practices, and to share only sterilized drug paraphernalia. The penalty for the
first offence is 10,000 Rupees, ($153.00 USD) which is a lot of money to
someone who is really poor but if the behaviour is not corrected within one
year, the penalty can increase to between three months and one year in prison, along
with a larger fine.
The
proposed law included an exception clause that recognized barriers to
disclosure and unequal responsibility for HIV prevention within sexual
relationships: It said in part, “There shall be no duty to prevent
transmission, particularly in the case of women, where there is a reasonable
apprehension that the measures and precautions may result in violence,
abandonment or actions which may have a severe negative effect on the physical
or mental health and safety of the HIV-positive person, their children or
someone who is close to them.
Such
a law would never pass in the United States, Canada and other democratic countries.
Such a law would bring about extortion and brutality against those suffering
from HIV.
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